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Malnutrition

Nancy08

Member
Hi Everyone. This is my first post. I’m 12 years out and have been having health issues that I’m wondering if anyone else is experiencing.

I have had chronic malnutrition for about 10 years. Whatever I eat goes right through me. I’ll have diarrhea up to 8 times a day with severe abdominal pain that’s so bad I need to be on daily pain killers. This happens whether I’m following the gastric bypass diet perfectly or eating unhealthy. It’s just been recently that I’ve gained 10 pounds. I’m usually underweight. I’m not able to work because of this. I am definitely NOT having a pity party! I would have the surgery again in a heartbeat because I am no longer diabetic or have high blood pressure. I also know I’ll live a lot longer. My doctors (and there have been many) can’t find a solution for this. If anyone is having the same issues? I’d love to hear from you!

Thanks and hang in there. Please don’t lose fact that you are all strong, brave people and absolutely beautiful inside and out!

Nancy
 
That is a hard journey, and you seem to have a great attitude about it! Not related to this surgery, but I did have a medical issue that took me going to a LOT of docs for a LOT of years to get answers... sometimes if your current team is stuck, it is worth just trying someone else to see if a new look from fresh eyes will at least set you in the right direction.
 
Thank you everyone for your feedback. It helps so much to get different viewpoints on this. It’s been so frustrating and discouraging to be told constantantly that there’s nothing I can do. I live in Seattle and the University of Washington has a great gastronomy department. There’s one physician that has experience in issues like this but I’ve been very hesitant in trying yet another doctor. You’ve given me the courage to reach out to her and give it another try.

I’ll let you all know how it goes. Thanks so much for the support!!
 
I’m so sorry about your hand! Wow! You are doing an amazing typing job being wrapped up like that! I’m still trying to find the specialist’s name but will talk with someone in the department and go from there. I’m actually encouraged by trying again. Haven’t felt this hope for a while.
 
Hi Everyone. This is my first post. I’m 12 years out and have been having health issues that I’m wondering if anyone else is experiencing.

I have had chronic malnutrition for about 10 years. Whatever I eat goes right through me. I’ll have diarrhea up to 8 times a day with severe abdominal pain that’s so bad I need to be on daily pain killers. This happens whether I’m following the gastric bypass diet perfectly or eating unhealthy. It’s just been recently that I’ve gained 10 pounds. I’m usually underweight. I’m not able to work because of this. I am definitely NOT having a pity party! I would have the surgery again in a heartbeat because I am no longer diabetic or have high blood pressure. I also know I’ll live a lot longer. My doctors (and there have been many) can’t find a solution for this. If anyone is having the same issues? I’d love to hear from you!

Thanks and hang in there. Please don’t lose fact that you are all strong, brave people and absolutely beautiful inside and out!

Nancy
I first want to say thank you for the last paragraph you rote I really needed to hear that. I had my bariatric bypass surgery in December 15 2018. I was 243. Before surgery 3 months later after surgery I can no longer eat or drink. I've been on feeding tube after feeding tube. I've been on medicines and back in the hospital almost 30 times in one year surgeon cannot seem to find out what went wrong. I am malnutrition 24-hour pain barely can walk. No strength at all. This is my very first time reaching out for support. I don't just want my life back. I want to be. Survivor and I will be hang in there. Ps. I'm 88lbs now
 
I first want to say thank you for the last paragraph you rote I really needed to hear that. I had my bariatric bypass surgery in December 15 2018. I was 243. Before surgery 3 months later after surgery I can no longer eat or drink. I've been on feeding tube after feeding tube. I've been on medicines and back in the hospital almost 30 times in one year surgeon cannot seem to find out what went wrong. I am malnutrition 24-hour pain barely can walk. No strength at all. This is my very first time reaching out for support. I don't just want my life back. I want to be. Survivor and I will be hang in there. Ps. I'm 88lbs now
Nancy & Serenity, your postings are alarming and quite honestly, inappropriate for this group. If you are seeking help and we are your resource, you're in the wrong place. Nancy, I would be happy to come and pick you up and take you to a hospital here in Seattle so you can get the help you need. Serenity, your body's skin and bones alone should weigh about 40 to 50 pounds, so if you're at 88 pounds, you are almost nothing but skin and bone.

We have had pranksters come here and say terrifying things, then disappear. Like kids who ring your doorbell, then run off before you can answer, they get some kick out of something that makes no sense. But we've had doorbell-ringers here. Usually if you look at their avatars, you'll see that they signed on on X day at X o'clock and the last time they were seen online was two minutes later. We never hear from them again.

So the more alarming a post is, the more suspicious I am that we're being pranked.

But let's assume you're both for real.

There is no excuse on earth for either of you not to be hospitalized this very moment. Nancy, if you've been taking something like Oxycontin for a decade, that's probably what's killing you. Research on just that one opioid shows the damage it does to your organs and when it gets to the point where your breathing is depressed enough, you just stop breathing and your heart stops beating. And I'm giving you the sanitized version of death by painkillers. Any doctor who gives you these drugs for 10 years belongs in jail. But if you've been doctor-shopping because you're an addict & need dozens of docs in order to get enough prescriptions to keep you addicted, you're working the system.

Bariatric surgery cannot be the cause of either of your multiple ailments. Either you are dying of some really horrible disease, or you're pranking us. No sane person would allow her body to deteriorate to this point and no doctor would allow her to die without extensive tests and hospitalizations.

I watched my little brother die over a period of 8 years with feeding tubes and PICC lines and tracheotomies, bleeding in his brain, unable to control his bodily functions, being put into forced comas to keep him alive a little longer so they could figure out how to treat him. He was an alcoholic, a heavy smoker, a diabetic, had hypertension and the more advanced his diseases became, the worse off he got. When he got his first motorized wheelchair, the first thing he did was take off down the ramp of his home and buy booze and cigarettes, which he sat in the grocery store parking lot, drinking and smoking, until the police located him. It was a miracle he lived to be 62 but he was in the grips of addiction that resulted in so many comorbidities, he didn't have a shot.

I loved him more than anyone in my family except my dad. I sat by his bed for 81 days in Harborview, suctioning his trach, applying cool rags to his head as he thrashed back and forth, sleeping in a chair every night so his wife could go back to the motel and do laundry and visit with her kids for a few hours, then storming the office of the hospital ombudsman and threatening lawsuits if they didn't do more to find out what it would take to get him home. He wanted his dog, Molly, who was getting old, to visit him but she was 150 miles away. He had a dozen surgeries, some because he kept pulling out his tubes, and his wife spent the rest of his life changing his diapers and injecting cans of Ensure into his stomach tube. And yet he told my brother and I that she was keeping him prisoner. They bound his hands in mittens and sometimes strapped his wrists to the railings of the bed because he would hurt himself if he were allowed free motion.
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It's agony to watch someone die and unimaginable when he's your husband.
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And to spend the rest of your life in bed with a feeding tube sewn into your guts:

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when you used to look like this:
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and then like this:

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and finally this:

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What you are both experiencing is NOT LIFE. You're both intelligent women who can communicate well and store facts and give history and feedback. What's missing from your picture is a diagnosis & care.

Like I said, I'll come and get you in my car and take you to one of Seattle's finest hospitals that you choose, Nancy. Serenity, I have no idea what to do for you, but this group is not for you. If you think 88 pounds is an acceptable weight for anyone over the age of 11, you need mental health care badly. Get some.

Here's what I'm going to do, and you'll understand this if you read my story and saw the pix above. I'm going to go just one more step with you. Nancy, you can send me a private message telling me when & where to pick you up. Serenity, the only information i ever want to hear from you is that you've been checked into a hospital and are being treated for your multitude of problems.

Then I'm putting you both on Ignore, because I don't have enough empathy to go around when a person voluntarily allows her life to be destroyed, then comes to the group where I'm a member and asks for help but won't get it. We are a group of people who are saving our lives. We don't self-diagnose and blame live-saving surgery for our medical problems. WE CAN'T HELP YOU. If you two are for real, wake up. Get professional help NOW.
First of all, I don't know who this is writing, but you have no right to say who is right and who is Not telling the truth who would want to make up anything about their lying? Being so sick and tormented right now. Who are you to judge them on how quick they respond? cannot put someone else's story with their story. I thought this was a support group not let me ridiculed that person for being as sick as she is now because of this weight loss surgery.
 
First of all, I don't know who this is writing, but you have no right to say who is right and who is Not telling the truth who would want to make up anything about their lying? Being so sick and tormented right now. Who are you to judge them on how quick they respond? cannot put someone else's story with their story. I thought this was a support group not let me ridiculed that person for being as sick as she is now because of this weight loss surgery.
Also, it is not another sickness or a mental condition ma'am, or whoever this may be it is because of the weight loss surgery that the doctor did something wrong. I will not go into it, but I think I said I thought this was a support group.
 
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