A bit miserable (RNY on Aug 2002)

[SuzanOB]

Hi! This is my first post/reply so not sure if I’m doing it correctly or not! I’m 11 years out, almost 12 from roux en-y and having some struggles so it’s nice to see some who are quite a bit out from surgery. Was 320 at surgery date and at 193 now. Lost down to lowest of 162 and bounce back and forth 20 pounds here and there but I’m happy where I’m at. Biggest issues for me are totally do not absorb B12 so on injection every week, also do not absorb D at all which means issues with Calcium, too, so 50k of D every 7 days. Couple of iron infusions a year, but biggest struggle has been constipation. Major issue the past year, one obstruction that was not fun at all. I get daily water in but still struggle w constipation. It’s horrible! Anyone else who is 5 plus years out having these same types of issues? I don’t live in same state that I had surgery anymore, and it’s been really hard to find a provider who understands our unique issues and needs. For the first time since surgery, I’m having regrets about my choice and that’s a big downer, too.

I can completely relate to issues with a provider. I moved to eastern TN a year ago and almost all the bariatric methods have centered around the sleeve. Can't relate. Had an RNY in April 2015 by ALSA bariatric group in Fresno, CA, one of the best teaching bariatric centers in that part of the country where Drs teach other Drs worldwide. Do I miss them? like crazy. If they were remotely closer, I would travel. I am at the point of an annual visit. Something to think about. It's not like you have to be there every week. Search for a source in a metropolitan area close to you. As far as the vitamin issues, I would start doing my own research and strip down to the base metal and build up.... whatever I had been doing that wasn't working, I would do different. Like, I would start getting 20 a minimum of 20 minutes of sunshine every day the weather allowed for me for the natural bit D that you cannot be denied you and then do something totally different around the liquid calcium. I have been using Wellessee liquid that I get from Walmart (best price and free shipping over $50. I also DO NOT shop the center of my market. Real food only, no processed anything, which means outside perimeter of the store. If you truly start reading labels you will see all kinds of crap that you don't want to eat... don't recognize it on the label, don't eat it. Pretty simple. I also got stuck on eating high level protein with greek yoghurt when I was first home from the hosp and it stuck. I bought an instant pot and make my own and saved myself about $60 a month and started drinking things like blue diamond cashew almond blend unsweetened vanilla milk. It's fabulous and makes the worlds best base for protein drinks. Which B12 are you using? There are a zillion out there. Most that I found were amazingly difficult to dissolve until I stumbled onto Unjury.com They have a whole line of Bariatric centered chewable and I really like their fast acting b12. Is this a lot of work? Yep. Pain in the ass? Yep. Are you an amazing, miraculous being that is spirit filled and worthy of only the best the world can give? Yep. Don't let anything but fear and common sense hold you back!

 

[SuzanOB]

Nice to have you back for any length of time. I had my right knee replaced in 2009. It was a really hard recovery and I haven't fully recovered because it didn't heal right. Make sure you start Physical Therapy immediately and do not skip it I'm pretty sure that's the reason mine went wrong.

Group members if you haven't met Suzan before, scroll up in this thread until you see her pictures. Put a face to the name. She is a success story. So let her inspire you.

When is your endoscopy?
We are all success stories. Mine varies minute by minute, like ,most I think, depending on what kind of movie is playing in my mind.

 

[SuzanOB]

Isn't Suze awesome? It's like a sunny day, hair flying, cruising down the backroads when she drops by. Congrats on dropping that weight0 the HARD way! But that's the way you roll!

I use the sublingual B complex from Trader Joe's. Melts in seconds. I get all my supplements there. Cheap and good, like a great first date, and I have the metabolic panels & CBS to prove it.

I don't know what took so long for me to try nutmilks, but wow! Can't make a decent bechamel with almond milk, but I'm enjoying it by the glass.

Good to hear from ya. A few of our members are having surgery in July, and more in August and September. I'm sure they would appreciate your sage advice. Hang out.

See, this is why you are my friend... always reminding me of the things that I already knew but forgot. Trader Joes. Of course. Please be sure to try the Blue Diamond Almond Cashew blend. It's the best ever I think.

 

[Victoria_san_diego]

I'm 15 years out

 

[SuzanOB]

BTW, did I understand you to say that you are making your own Greek yogurt in an Instapot?

Are you familiar with Living Beautifully by Pema Chodron?

BTW, did I understand you to say that you are making your own Greek yogurt in an Instapot?

She nailed it with the ambiguity of being human. We buy into the idea that life SHOULD go along smoothly.... a relative flat line sort of... Funny how it doesn't work that way. But she truly is a sage.
Life has not been a flat line here. having issues with the knee. Still not riding..... and lots of pain. They just hung another 12 weeks of PT on me.

 

[SuzanOB]

I'm 15 years out

Hi Victoria! Sorry we aren't as responsive as we could be here, but Diane and I do resurface ... eventually. So, 15 years out. What does that look like in comparison to say 3 years out. Does it change? Level? Present new problems?
I grew up on the beaches in SD and miss them, but I don't miss the basic CA experience living here in TN. I never in my life thought I would say that... never thought I would ever be anything but a CA-ian. Funny how things and ideas change as we age.

 

[SuzanOB]

Hi! This is my first post/reply so not sure if I’m doing it correctly or not! I’m 11 years out, almost 12 from roux en-y and having some struggles so it’s nice to see some who are quite a bit out from surgery. Was 320 at surgery date and at 193 now. Lost down to lowest of 162 and bounce back and forth 20 pounds here and there but I’m happy where I’m at. Biggest issues for me are totally do not absorb B12 so on injection every week, also do not absorb D at all which means issues with Calcium, too, so 50k of D every 7 days. Couple of iron infusions a year, but biggest struggle has been constipation. Major issue the past year, one obstruction that was not fun at all. I get daily water in but still struggle w constipation. It’s horrible! Anyone else who is 5 plus years out having these same types of issues? I don’t live in same state that I had surgery anymore, and it’s been really hard to find a provider who understands our unique issues and needs. For the first time since surgery, I’m having regrets about my choice and that’s a big downer, too.

Sorry you're having all the issues. I had a bout myself of anemia.... took me totally by surprise. Had a couple of infusions and changed the way that I eat. More power greens....every day if I possibly can and upped the colored everything.... real fruit juices... berry, grape ... more peppers and cabbages. Real food is the answer for me rather than depending on supplements to do it all.... I still take me and know that I will take them forever, but I put things in my body today that I know it needs and I don't eat any junk of any kind. That has helped the most.
Stick around. Diane and I need responders.

 

[SuzanOB]

Isn't Suze awesome? It's like a sunny day, hair flying, cruising down the backroads when she drops by. Congrats on dropping that weight the HARD way! But that's the way you roll!

I use the sublingual B complex from Trader Joe's. Melts in seconds. I get all my supplements there. Cheap and good, like a great first date, and I have the metabolic panels & CBCs to prove it.

I don't know what took so long for me to try nutmilks, but wow! Can't make a decent bechamel with almond milk, but I'm enjoying it by the glass.

Good to hear from ya. A few of our members are having surgery in July, and more in August and September. I'm sure they would appreciate your sage advice. Hang out.

I would like to know about the supplements you get from TJ

 

[Honeybee04]

I am very post op. Almost 16 years. Surgery day I weighed 307. I got down to 160lbs, had 4 pregnancies including a set of twins after and am hovering at 207 now. I have chronic anemia and everything seems to upset my digestive system. I saw my surgeon for one post surgery follow up then he shut down his practice. I take protonix for my stomach but I think I really need to get my diet way back on track. I would love to find an online friend or two that are very far post op to chat with.

Hi, I had my surgery in May 2004. I was 34, had a unplanned baby at 36 and the day I turned 38 my husband passed away. I weighed 252 pounds day of surgery got down to 150. My goal weight was 130. After my husband passed the weight slowly creep up. Highest I’ve got was 194. Back down to 183. I’d love to lose back to 150. I’ve had a lot of health problems. I still see my surgeon yearly, I have low ferritin I get iron infusions for. Feel free to message me. I’m new here.

 

[Brenda2010]

Hi, I had my surgery in May 2004. I was 34, had a unplanned baby at 36 and the day I turned 38 my husband passed away. I weighed 252 pounds day of surgery got down to 150. My goal weight was 130. After my husband passed the weight slowly creep up. Highest I’ve got was 194. Back down to 183. I’d love to lose back to 150. I’ve had a lot of health problems. I still see my surgeon yearly, I have low ferritin I get iron infusions for. Feel free to message me. I’m new here.

Welcome Honeybee. I'm so sorry to hear about the loss of your husband. I can only imagine how difficult it's been. I'm sure between that great loss and raising a child on your own, it's been nearly impossible to focus on yourself. It's great to hear that you still see your surgeon annually. I wish you all the best as you try to get back down to your low weight. Tomorrow is my 7 month surgerversary so I don't have much advice to give to a veteran like yourself but we're here for support!

 

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[W8lift4life]

Hi there. I am a new member also this is my first post. My RNY BYPASS was July 2015. Since November I have put on 15 pounds after maintaining my set weight. I am completely freaking out. This is the only place I know where I can go and say I know that 15 pounds can turn into 50 in a heartbeat. My greatest fear right this second is that I will trade away this second chance for a healthy life, a better body image and a happier life in general and not be able to seemingly have any be any control over my food addiction. Obesity is an illness I have to keep remembering that obesity is an illness and I come from a long line of it like most of us. My food choices are really good for the most part. Preop I had to do a nutritional diary and nutritional classes which were pretty much a repeat of all the things that I’ve learned over the years. I had to do the classes for six months before my surgery as per my insurance. During that time I gave up all grains except occasional brown rice and some rice flour items. I completely let go of that fat flour sugar combination Because it is my worst trigger. That, I believe, has been the main reason I have been able to maintain my weight I’ve not had a bite not one bite of anything even remotely related to bread, crackers, pancakes, cake, cereal,nothing that is made with flour. It was the best thing I ever did for myself. Now I find that I am grazing. I cannot seem to get a handle on the frequency that I am eating. And of course whatever you focus on gets larger. So the panic that I’m feeling around not being able to control this is only making it worse. Over the last month or so it’s gotten better and I’m not so crazy over it. My number one greatest fear is that I’m going to be changing my setpoint. I hovered at or near 160 for the better part of time since July 2015 and now with this 15 to 18 pounds that I have put on I am really scared that I’m going to reset that set point. This is a very real thing. Set points are not a myth and they can change if I’m not paying attention. So this is also a place for me to come and talk. I recently moved from California and one of the best bariatric groups in the state to Tennessee. I have yet to see one other person that’s had a gastric bypass in my part of the country most all of the people that I’ve had surgery have had the sleeve. The bariatric support groups out in this part of the country are useless. They talk about stuff that should’ve already been addressed Preop and that Absolute solutions like which vitamins to take. That’s completely handle with a sheet of paper and recommendations. Has nothing to do with the real problems of maintaining weight loss. My start weight was 244, my set / desired weight is 160 Currently it’s 178.

I am new and have the same issue.Had my roux en y about 10 years ago and have seen my weight creeping up.I am going to do the 5 day pouch test starting monday.Ill let you know how it goes.

 

[MaryOD]

I am really glad that you are here. This is a good place to vent and tell it how it was and how it is now... wish that there was more participation. I think it's very typical of women who have experience any kind of bariatric surgery and lost huge amounts of weight, to want to hide when they regain or start to gain weight. So consequently, not many are telling the truth and are sitting in the dark too ashamed to bring the elephant or the dragon out into the light of day. We are only as sick as our secrets. You are miles ahead, reaching out is the solution... the first act of coming to aid for yourself. Good on you!! Don't stop making noise and looking for help!

I am 4 years post op and have maintained my nearly 100 lb loss for that period of time, until this last Nov. I have no idea what happened, if anything at all, but I completely turned into a shark and just was swimming around with my mouth hanging open. My food choices were good, but somewhere in there I started to graze and simply did not seem like I was ever going to be able to stop. At the 7 pound mark of gaining I started to completely freak out and the scale continued upward. Long about 12 pounds I was panicking beyond relief and struggling to get back to 'normal', BY MYSELF. I Kept thinking that this was nuts, I can do this blah blah and then finally I started looking for help, support, others that were the same as me to help me. I returned to doing the things that I know to do that work (which is the definition of wisdom). Started keeping a food log (my fitness pal.com) and amazingly that started to help reel things in a bit. I wasn't bingeing, but I was scared that I had stretched everything out. I did a pouch reset regime for a few days and that helped to restore that instructive feeling of being full. Just the act of doing positive things for myself calmed the panic. Since the bariatric support in this area completely sucks I started going to OA meetings just so I could talk about the gain and the craziness that goes with it. What I didn't do was beat myself up, ever. I don't do that anymore and haven't for years. I don't deserve that.

So, you're on the right track. I am assuming that you have found another bariatric surgeon that you are checking in with now. That would be the first order of the day given the other complication and just because we all need to have our labs run every year by folks that know what they are doing.
Those of us that are here will listen and give you feedback as best we can. You are in my thoughts.

I am waiting for a surgery date and I am so conflicted. I have lost 140 x 2 and 100 pounds x 5. I always gain it back, except the last time I kept off 80 of the 140. My highest weight was 344. I am now at 255. My biggest fear is that I will have this surgery and then regain all the weight. Im wondering if I should just work on the mindset. Will this be worth it? A friend of mine has had 2 bypasses. Lost 200 pounds 1st time, gained it all back. On second one, she has kept her weight down with some ups and down. She resets her pouch frequently.

 

[tlynn0257]

Welcome to the group. I have not had my surgery yet but you can share you experience with me. I am having the RNY surgery May 6th. You had some success. Don't beat yourself up to much over it. Kids always put weight on you. You just have to get back on track. My other group keeps talking about a pouch reset. It has nothing to do with your pouch at all but with your mind. You start the same diet over that you had at the beginning and then you can get back on track. But if you want good advice from another look for Diane. She gives good advice. But she would tell you to go to the doctor but since you surgeon closed down you should talk to you primary and see what they say. They should be able to help you in some way or at least point you in the right direction

what is RNY?

 

[missdarmitage]

I am new and have the same issue.Had my roux en y about 10 years ago and have seen my weight creeping up.I am going to do the 5 day pouch test starting monday.Ill let you know how it goes.

I'm very interested to hear how this goes. I haven't hit that point yet as I am only 6 weeks out from my RNY but would love any feedback you have as you go through the reset and after. Good luck and I really hope it helps!

 

[MamaBearOf4]

what is RNY?

Gastric bypass surgery.

 

[arose2him]

I am very post op. Almost 16 years. Surgery day I weighed 307. I got down to 160lbs, had 4 pregnancies including a set of twins after and am hovering at 207 now. I have chronic anemia and everything seems to upset my digestive system. I saw my surgeon for one post surgery follow up then he shut down his practice. I take protonix for my stomach but I think I really need to get my diet way back on track. I would love to find an online friend or two that are very far post op to chat with.

 

[Ladyinblue]

I am very post op. Almost 16 years. Surgery day I weighed 307. I got down to 160lbs, had 4 pregnancies including a set of twins after and am hovering at 207 now. I have chronic anemia and everything seems to upset my digestive system. I saw my surgeon for one post surgery follow up then he shut down his practice. I take protonix for my stomach but I think I really need to get my diet way back on track. I would love to find an online friend or two that are very far post op to chat with.

Hi, I'm sorry that you are having issues and agree with the others. If you cannot find another bariatric surgeon at the very least get to your gp and have them run a full and complete bloodwork (including all b vitamins). B1 is usually not included make sure they check it too. It's a crucial vitamin. I am suffering the effects of a severe b1 deficiency. I am 29 years post OP and have lived the nightmare of just about every deficiency. Each has its own side effects and they are all very unpleasant if not debilitating or even lethal. I've met resistance many times and learned that you sometimes have to be your own advocate. I am in no way trying to scare you. If you remain diligent with check ups, bloodwork, and supplements you will thrive but if you become complacent there are many things that can and will kick your but. I wish you well and if you ever have any questions I would be happy to help if I can.