I got a call back from the nurse navigator. I will be taking carafate 4x a day. I will also be going to see the GI doctor next week. Stinkerbelle I can't handle beef at all now. It hurts me really badly. So I do chicken, fish and shrimp as far as meats go. It will not be a big deal for me not to eat beef at all. Not looking forward to having an endoscopy but if that is what is needed then so be it. I am allergic to nsaids more a whole lot worse than others. So the pepto that I am taking may in fact be the big trouble maker for me. I just didn't understand why when I kept tell them over and over that I am allergic to nsaids that I was still put on pepto. I guess you live and you learn. I am just glad that the aspirin in the pepto did not do me in.
Tillie, I am so sorry your going through this... The Carafate is awesome. The first few doses I took made certain spots in my belly feel some burning, that was the Carafate coating the irritations. This only lasted about 2 days then all was great.
I am able to eat shrimp, salmon, boneless pork, chicken, crab, most fish with no issue... I do use my pressure cooker or my George Forman a lot when making chicken, it makes the meat very moist and very tender and easier to tolerate.
Try eating some boneless pork loin that has been marinated in Italian dressing or the Adobo with saffron seasoning then wrapped in several layers of aluminum foil and slow roasted.. The texture is awesome and satisfies the chew and feels the belly nicely with little issue.
I don't know where your at on portion size, I have to vary my portions on a daily basis depending on the mood of my pouch and when I decrease my protein portion size I have to add a protein shake to make sure I am getting my protein numbers for the day.. I range from 1.5 ounces of protein with 1 ounce of fruit or veggies. per meal to 2.5 ounces of protein per meal with 1.5 to 2 ounces of fruit, veggies or complex carb per meal depending on how my pouch is behaving... I have learned to take it all in stride.
The big clue for my pouches behavior is the hiccupping or the feeling that I am going to reflux.
I have also learned that having a cup of hot tea or broth about 10 minutes before eating helps a lot as well.
I am also in the process of changing vitamin brands, I am going back to the chewable. I have found that my pouch fills up very quickly when I take all of my supplements in the morning and evening which has caused some irritation and hiccups due to the irritation.
If you get the hiccups while eating, STOP and wait a few moments (5 minutes) before taking another bite. The hiccups indicate your pouch is not happy and needs to rest for a few minutes..
Honey this all a learning curve that can be and is sometimes frustrating as hell...
Kind of like men and teenagers, LOL, As soon as you think you have the answers your pouch changes the questions on you...
Patience, patience and more patience.. Re-read your pouch owners manual, the one your surgeon and the team gave you again and again...
Take a deep breath and know it gets better with time.
